Table Of Contents
American Psychological Association: End of Life Resources
Report of the Children and Adolescents Task Force of the Ad Hoc Committee on End of Life Issues
Soros Foundation Open Society Institute: Project on Death in America
Growth House, Inc., provides content development and syndication services for organizations working with death and dying issues.
The Natural Death Centre (United Kingdom)
The Death Clock: How long do you have to live?
Guide to Sociological Thanatology. An almost entertaining site looking at the many faces and aspects of dying and death. There are many links and the site has received numerous awards for content. Professor Michael C. Kearl: Trinity University, San Antonio, Texas: Department of Sociology & Anthropology
Seeing the Difference: A Project on Viewing Death and Dying in Interdisciplinary Perspective
“Before I Die” PBS Documentary
The End of Life: Exploring Death in America: NPR Transcripts and audio
Mental Health: A Report of the Surgeon General: Chapter 5 Older Adults and Mental Health
Neimeyer, R. A., & Van Brunt, D. (1995). Death anxiety. In Wass, H. & Neimeyer, R. A. (Eds.), Dying: Facing the facts (3rd ed.; pp. 49-88). Philadelphia, PA: Taylor & Francis.
Deaths by Mass Unpleasantness: Estimated Totals for the Entire 20th Century
Nuland, Sherwin B. (1993). How We Die: Reflections on Life’s Final Chapter. New York: Alfred A. Knopf.
The Surgeon General’s Call To Action To Prevent Suicide
The Coming Plague by Laurie Garrett
Three Things Ric Elias Learned While His Plane Crashed
Living Intimately with Thoughts of Death. NY Times, 2019
National Consensus Project for Quality Palliative Care
NCP Guidelines Summary
NCP Guidelines Full Text
Hospice foundation of America
General Hospice Info: Services, Patients, Children, Caregivers, Bereavement
National Hospice and Palliative Care Organization
International Association of Hospice and Palliative Care
Center to Advance Palliative Care (CAPC)
Get Palliative Care
American Academy of Hospice and Palliative Medicine
Clinical Practice Guidelines for Quality Palliative Care. 2004. A publication of the National Consensus Project for Quality Palliative Care, One Penn Center West, Suite 229, Pittsburgh, PA, 15276
A Guide To Primary Care For People With HIV/AIDS, 2004 edition
Riggle, E. D. B., & Rostosky, S. S. (2005). For better or for worse: Psycholegal soft spots and advance planning for same-sex couples. Professional Psychology: Research and Practice, 36, 90-96.
Resources in Spanish
Issues of Access and Variability in Health Care at the End of Life
Mesothelioma Group
Palliative Care Organizations
The Dying Process: A Guide for Caregivers
Lynn, J. and Harrold, J. (1999). Handbook for Mortals: Guidance for People Facing Serious Illness. Oxford University Press.
J. L. Werth, Jr., & D. Blevins (Eds.), Psychosocial issues near the end of life: A resource for professional care providers. Washington, DC: American Psychological Association.
Haley, W. E., Larson, D. G., Kasl-Godley, J., Neimeyer, R. A., & Kwilosz, D. M. (2003). Roles for psychologists in end-of-life care: Emerging models of practice. Professional Psychology: Research and Practice, 34, 626-633.
Katz, R. S., & Johnson, T. A. (2006). When professionals weep: Emotional and countertransference responses in end-of-life care. New York: Routledge.
Werth, J. L., Jr., Gordon, J. R., & Johnson, R. (2002). Psychosocial issues near the end of life. Aging and Mental Health, 6, 402-412.
Association for Death Education & Counseling
Anticipatory Grief: Preparing for the Death of a Loved One
National Organization of Parents of Murdered Children
Widownet: A website for widows and widowers
Lynn, J. and Harrold, J. (1999). Handbook for Mortals: Guidance for People Facing Serious Illness. Oxford University Press.
Casarett, D., Kutner, J.S., Abrahm, J. (2001). “Life after Death: A Practical Approach to Grief and Bereavement.” Annals of Internal Medicine, Vol. 134, No. 3.
Zilberfein, F. (1999). “Coping with Death: Anticipatory Grief and Bereavement.” Generations, Vol. XXIII, No. 1, 1999
Perdida, Pena y Duelo
Beyond Indigo: Changing the way you feel about grief and loss Message boards, Newsletters, Tools, Books, Channels, Stories, Memorials
GriefNet: Internet Support Group
Funerals and Memorials: consumer website
Hospice: End-of-Life Basic Questions and Answers: Resources in Spanish
Braun, K. L., Pietsch, J. H., & Blanchette, P. L. (Eds.). (2000). Cultural issues in end-of-life decision making. Thousand Oaks, CA: Sage
Irish, D. P., Lundquist, K. F., & Nelsen, V. J. (Eds.). (1993). Ethnic variations in dying, death, and grief. Philadelphia, PA: Taylor & Francis.
Kemp, C. (2005). Cultural issues in palliative care. Seminars in Oncology Nursing, 21, 44-52.
Kirchberg, T. M., Neimeyer, R. A., & James, R. K. (1998). Beginning counselors’ death concerns and empathic responses to client situations involving death and grief. Death Studies, 22, 99-120.
Klessig, J. (1992). The effect of values and culture on life-support decisions. Western Journal of Medicine, 157, 316-322.
Koenig, B. A., & Gates-Williams, J. (1995). Understanding cultural differences in caring for dying patients. Western Journal of Medicine, 163, 244-249.
Kwak, J., & Haley, W. E. (2005). Current research findings on end-of-life decision making among racially or ethnically diverse groups. Gerontologist, 45, 634-641.
Moral & Ethical Considerations
The Report to the Board of Directors from the APA Working Group on Assisted Suicide and End-of-Life Decisions
Kastenbaum, R. (2001). Death, Society, and Human Experience, 7th edition. Boston: Allyn & Bacon.
Kevorkian, J. (1991). Prescription: Medicide. Buffalo, NY: Prometheus Press.
Kleespies, P. M. (2004). Life and death decisions: Psychological and ethical considerations in end-of-life care. Washington, DC: American Psychological Association.
The World Federation of Right To Die Societies
Exit International is the pro-choice voluntary euthanasia/ assisted suicide organisation founded by Dr. Philip Nitschke
Euthanasia Research and Guidance Organization (Hemlock Society founder Derek Humphry)
Roscoe, L. A., Osman, H., & Haley, W. E. (2006). Implications of the Schiavo case for understanding family caregiving issues at the end of life. Death Studies, 30, 149-161.
Rosenfeld, B. (2004). Assisted suicide and the right to die: The interface of social science, public policy, and medical ethics. Washington, DC: American Psychological Association.
Spiro, H. M., Curnen, M. G. M., & Wandel, L. P. (Eds.). (1996). Facing death. New Haven, CT: Yale University Press.
Responding to Patients in the Persistent Vegetative State
Life or death? Twice she had to make critical decision
Wanzer, S. and GlenMullen, J. (2007). To Die Well: Your Right to Comfort, Calm and Choice in the Last Days of Life
California Psychological Association (2016) “California’s End of Life Option Act: CPA Guidance for Psychologists”. (Paper includes additional resources section)
California Board of Psychology on The End of Life Option Act: Information and Guidance for Psychologists
Compassion & Choices
Coalition for Compassionate Care
California Medical Association On Call Document: The End of Life Option Act
End of Life Option Act, CA (AB-15) (full text)
Washington Death with Dignity Act: WSPA Guidelines for Mental Health Professionals
Frankel, S. & Alban, A. (2016). Good News (Maybe) About Bad News: California Joins Four Other States that Allow Terminally Ill People to End Their Lives: What Can We Learn from the Track Records? California Psychologist, Summer, 28-29.
Medical Board of CA: End of Life Option Act, 2016
Jull-Patterson, D. (2016). What Mental health Clinicians Need to Know About ABX2 15. U.C. Berkeley Extension.
The Role of Psychology in End-of-Life Decisions and Quality of Care (APA)
The End of Life Option Act: How Will It Affect Psychologists and their Patients? (CA Psychologist)
As California’s End of Life act goes into effect, some doctors question where to draw the line
Rinpoche, S. (1992). The Tibetan Book of Living and Dying, edited by Gaffney, P and Harvey, A. San Francisco: Harper.
Namkhai Norbu, Trans & Ed. Reynolds, John (1984, 1987). The Cycle of Day and Night, An Essential Tibetan Text on the Practice of Contemplation. Barrytown, NY: Station Hill Press.
Watanabe,-Tsuneo (2003). “Lucid Dreaming: Its Experimental Proof and Psychological Conditions”. Journal-of-International-Society-of-Life-Information-Science 21 (1): 159-162.
LaBerge, S.(1990). “Lucid Dreaming: Psychophysiological Studies of Consciousness during REM Sleep.” In Bootzen, R. R., Kihlstrom, J.F. & Schacter, D.L., (Eds.): Sleep and Cognition. Washington, D.C.: American Psychological Association, pp. 109 – 126.