End Of Life Issues

Resources & References




American Psychological Association: End of Life Resources

Report of the Children and Adolescents Task Force of the Ad Hoc Committee on End of Life Issues

Soros Foundation Open Society Institute: Project on Death in America

Growth House, Inc., provides content development and syndication services for organizations working with death and dying issues.

The Natural Death Centre (United Kingdom)

The Death Clock: How long do you have to live?

Guide to Sociological Thanatology. An almost entertaining site looking at the many faces and aspects of dying and death. There are many links and the site has received numerous awards for content. Professor Michael C. Kearl: Trinity University, San Antonio, Texas: Department of Sociology & Anthropology

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Facing Death

Seeing the Difference: A Project on Viewing Death and Dying in Interdisciplinary Perspective

“Before I Die” PBS Documentary

The End of Life: Exploring Death in America: NPR Transcripts and audio

Mental Health: A Report of the Surgeon General: Chapter 5 Older Adults and Mental Health

Neimeyer, R. A., & Van Brunt, D. (1995). Death anxiety. In Wass, H. & Neimeyer, R. A. (Eds.), Dying: Facing the facts (3rd ed.; pp. 49-88). Philadelphia, PA: Taylor & Francis.

Deaths by Mass Unpleasantness: Estimated Totals for the Entire 20th Century

Nuland, Sherwin B. (1993). How We Die: Reflections on Life’s Final Chapter. New York: Alfred A. Knopf.

The Surgeon General’s Call To Action To Prevent Suicide

The Coming Plague by Laurie Garrett

Three Things Ric Elias Learned While His Plane Crashed

Living Intimately with Thoughts of Death. NY Times, 2019

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Palliative And Hospice Care

National Consensus Project for Quality Palliative Care

NCP Guidelines Summary

NCP Guidelines Full Text

Hospice foundation of America

General Hospice Info: Services, Patients, Children, Caregivers, Bereavement

National Hospice and Palliative Care Organization

International Association of Hospice and Palliative Care

Center to Advance Palliative Care (CAPC)

Get Palliative Care

American Academy of Hospice and Palliative Medicine

Clinical Practice Guidelines for Quality Palliative Care. 2004. A publication of the National Consensus Project for Quality Palliative Care, One Penn Center West, Suite 229, Pittsburgh, PA, 15276

A Guide To Primary Care For People With HIV/AIDS, 2004 edition

Riggle, E. D. B., & Rostosky, S. S. (2005). For better or for worse: Psycholegal soft spots and advance planning for same-sex couples. Professional Psychology: Research and Practice, 36, 90-96.

Resources in Spanish

Issues of Access and Variability in Health Care at the End of Life

Mesothelioma Group

Palliative Care Organizations

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Care Givers

The Dying Process: A Guide for Caregivers

Lynn, J. and Harrold, J. (1999). Handbook for Mortals: Guidance for People Facing Serious Illness. Oxford University Press.

J. L. Werth, Jr., & D. Blevins (Eds.), Psychosocial issues near the end of life: A resource for professional care providers. Washington, DC: American Psychological Association.

Haley, W. E., Larson, D. G., Kasl-Godley, J., Neimeyer, R. A., & Kwilosz, D. M. (2003). Roles for psychologists in end-of-life care: Emerging models of practice. Professional Psychology: Research and Practice, 34, 626-633.

Katz, R. S., & Johnson, T. A. (2006). When professionals weep: Emotional and countertransference responses in end-of-life care. New York: Routledge.

Werth, J. L., Jr., Gordon, J. R., & Johnson, R. (2002). Psychosocial issues near the end of life. Aging and Mental Health, 6, 402-412.

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Grief And Bereavement

Association for Death Education & Counseling

Anticipatory Grief: Preparing for the Death of a Loved One

National Organization of Parents of Murdered Children

Widownet: A website for widows and widowers

Lynn, J. and Harrold, J. (1999). Handbook for Mortals: Guidance for People Facing Serious Illness. Oxford University Press.

Casarett, D., Kutner, J.S., Abrahm, J. (2001). “Life after Death: A Practical Approach to Grief and Bereavement.” Annals of Internal Medicine, Vol. 134, No. 3.

Zilberfein, F. (1999). “Coping with Death: Anticipatory Grief and Bereavement.” Generations, Vol. XXIII, No. 1, 1999

Perdida, Pena y Duelo

Beyond Indigo: Changing the way you feel about grief and loss Message boards, Newsletters, Tools, Books, Channels, Stories, Memorials

GriefNet: Internet Support Group

Funerals and Memorials: consumer website

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Cross-Cultural Issues

Hospice: End-of-Life Basic Questions and Answers: Resources in Spanish

Braun, K. L., Pietsch, J. H., & Blanchette, P. L. (Eds.). (2000). Cultural issues in end-of-life decision making. Thousand Oaks, CA: Sage

Irish, D. P., Lundquist, K. F., & Nelsen, V. J. (Eds.). (1993). Ethnic variations in dying, death, and grief. Philadelphia, PA: Taylor & Francis.

Kemp, C. (2005). Cultural issues in palliative care. Seminars in Oncology Nursing, 21, 44-52.

Kirchberg, T. M., Neimeyer, R. A., & James, R. K. (1998). Beginning counselors’ death concerns and empathic responses to client situations involving death and grief. Death Studies, 22, 99-120.

Klessig, J. (1992). The effect of values and culture on life-support decisions. Western Journal of Medicine, 157, 316-322.

Koenig, B. A., & Gates-Williams, J. (1995). Understanding cultural differences in caring for dying patients. Western Journal of Medicine, 163, 244-249.

Kwak, J., & Haley, W. E. (2005). Current research findings on end-of-life decision making among racially or ethnically diverse groups. Gerontologist, 45, 634-641.

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Moral & Ethical Considerations

The Report to the Board of Directors from the APA Working Group on Assisted Suicide and End-of-Life Decisions

Kastenbaum, R. (2001). Death, Society, and Human Experience, 7th edition. Boston: Allyn & Bacon.

Kevorkian, J. (1991). Prescription: Medicide. Buffalo, NY: Prometheus Press.

Kleespies, P. M. (2004). Life and death decisions: Psychological and ethical considerations in end-of-life care. Washington, DC: American Psychological Association.

The World Federation of Right To Die Societies

Exit International is the pro-choice voluntary euthanasia/ assisted suicide organisation founded by Dr. Philip Nitschke

Euthanasia Research and Guidance Organization (Hemlock Society founder Derek Humphry)

Roscoe, L. A., Osman, H., & Haley, W. E. (2006). Implications of the Schiavo case for understanding family caregiving issues at the end of life. Death Studies, 30, 149-161.

Rosenfeld, B. (2004). Assisted suicide and the right to die: The interface of social science, public policy, and medical ethics. Washington, DC: American Psychological Association.

Spiro, H. M., Curnen, M. G. M., & Wandel, L. P. (Eds.). (1996). Facing death. New Haven, CT: Yale University Press.

Responding to Patients in the Persistent Vegetative State

Life or death? Twice she had to make critical decision

Wanzer, S. and GlenMullen, J. (2007). To Die Well: Your Right to Comfort, Calm and Choice in the Last Days of Life

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End of Life Option Act

California Psychological Association (2016) “California’s End of Life Option Act: CPA Guidance for Psychologists”. (Paper includes additional resources section)

California Board of Psychology on The End of Life Option Act: Information and Guidance for Psychologists

Compassion & Choices

Coalition for Compassionate Care

California Medical Association On Call Document: The End of Life Option Act

End of Life Option Act, CA (AB-15) (full text)

Washington Death with Dignity Act: WSPA Guidelines for Mental Health Professionals

Frankel, S. & Alban, A. (2016). Good News (Maybe) About Bad News: California Joins Four Other States that Allow Terminally Ill People to End Their Lives: What Can We Learn from the Track Records? California Psychologist, Summer, 28-29.

Medical Board of CA: End of Life Option Act, 2016

Jull-Patterson, D. (2016). What Mental health Clinicians Need to Know About ABX2 15. U.C. Berkeley Extension.

The Role of Psychology in End-of-Life Decisions and Quality of Care (APA)

The End of Life Option Act: How Will It Affect Psychologists and their Patients? (CA Psychologist)

As California’s End of Life act goes into effect, some doctors question where to draw the line


Spiritual Consideratons

Rinpoche, S. (1992). The Tibetan Book of Living and Dying, edited by Gaffney, P and Harvey, A. San Francisco: Harper.

Namkhai Norbu, Trans & Ed. Reynolds, John (1984, 1987). The Cycle of Day and Night, An Essential Tibetan Text on the Practice of Contemplation. Barrytown, NY: Station Hill Press.

Watanabe,-Tsuneo (2003). “Lucid Dreaming: Its Experimental Proof and Psychological Conditions”. Journal-of-International-Society-of-Life-Information-Science 21 (1): 159-162.

LaBerge, S.(1990). “Lucid Dreaming: Psychophysiological Studies of Consciousness during REM Sleep.” In Bootzen, R. R., Kihlstrom, J.F. & Schacter, D.L., (Eds.): Sleep and Cognition. Washington, D.C.: American Psychological Association, pp. 109 – 126.

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